bath time

Weston Steven Skousen:

we are learning more and more each day about what makes Weston HAPPY!

Weston's favorite thing to do is take a BATH, if he is having a major sensory overload kind of day I will place him in the bath and he will be happy for hours, one of the reasons Weston loves the bath so much is because he is looking for that DEEP PRESSURE, he sits in the bath and hits the water as HARD as he can. Some other things he loves to do to find that deep pressure is swing in a blanket Mark and I at night place him in a blanket and swing him back and forth.Weston gets deep pressure lotion rubs 2 to 4 times a day. His new thing he is doing which is NOT a GOOD thing is he hits his head on everything and says"PAPA PAPA PAPA" while he is doing it, He now gets to wear a fun little helmet, because he is harming himself! the reason behind doing all these little things each and everyday is to help him not go into a major sensory overload if he does which still happens a lot he stops eating and just cries ALOT! Weston doesn't really have any interest in toys so I try and give him PLAY BATH TIME at least 2 times a day because thats what make him happy! play time= bath time

eating crackers....

{Here is a picture of what Weston's tube looks like, we are now only using this at night While he is sleeping so he get enough calories in for the day}
last week my kids and I headed over to my parents house for some play time with Nana and Papa. We are working on getting Weston use to other people holding him besides Mark and myself, lets just say that this has been a BIG deal! we are still working on it! We were there pretty much all day it was just before dinner time and my dad was holding Weston and he wasn't freaking out, I thought dang I wish I had my camera. I came back into the family room and to my SURPRISE my dad was feeding Weston a cracker, ok for "Normal" kids his age they should be eating table food by now but no not our Weston. He has MAJOR sensory to textures of food. He HATE anything that is dry he will start gagging like crazy if you try and feed him the little fruit puffs or a cracker anything DRY! Well he did it he ate my dad's entire cracker and LOVE it! Has he done it again NO! but hey I will take what I can get! So that was a BIG day for me. I never thought in a million years I would get SOOO excited over one of my kids eating a cracker.

Happy Days!

happy and healthy

I thought it was time for an update and even better a POSITIVE update!

Weston was back in the hospital 2 weeks ago due to gagging so much that he passed out, so after that fun hospital stay the doc. made some changes to his meds and Weston is now doing MUCH MUCH better.

Today I took some pictures of Weston laying in bed with Mark he was SOOO happy! It is so nice to see him happy and he is now crawling all over the place and he even pulled himself up to stand. So we are moving forward which I am very grateful for...

Weston has been such a joy I am GRATEFUL to be called his MOTHER, he has taught me so much in his 1 year of life.