{I LOVE those sweet DIMPLES}
{this is WESTON STEVEN SKOUSEN Bible, we take it everywhere with us it has all his info from anyone and everyone that has seen him}
{ This is a pix of his meds he has to take everyday}When you were born, you started throwing up breastmilk, and you cried all the time, so your mom took you to the Dr and they wanted you to be on a very special formula. You tried about 10 different formulas until they found one that worked the best, but you still cried all the time. But you would throw up everything and we did not know why. You were in the hospital about every month, with pnuemonia (which we now know was from aspirating into the lungs when you threw up). It was very hard on your Mom and Dad, because no one could tell them what was going on with you and you would cry til you were exhaused. We did find out you had an immune deficincy. They did DNA testing for Fragile X and Chromosome testing, (those tests came back saying you are perfect!) Each time you were in the hospital, your mom and dad had to leave Graycee and Ryker and take shifts staying with you every day. Your mommy and daddy never left you alone in the hospital. They stayed with you all day and all night, every time you were in the hospital. (Well, one night they let me stay with you because they were both so tired!) I told you stories and even tho you were in a breathing tent, You didn't cry very much that night, When I was telling you a Nana story, you smiled and listened....
The Doctors told us You were in "Failure to Thrive" This was very scary to all of us. This meant that you didn't want to eat anymore because it just hurt to much. They found out you had acid reflux, and you were on medicine for that. But you still cryed all the time. They found out You had a symptom called Strabismus, This is where your eyes would drift cross eyed. We don't really know what it was you were seeing, if you were seeing double or not, but we do know that after surgery on both eyes, you were much happier. (I think you might have been seeing 2 of everything..poor guy!) The surgery worked, but not as well as the Drs had hoped, so you are going to need to go have it done again, (they cut the tendons in the eye muscle, because they are too tight.) You cry a lot less now that your eyes are better!!
After many months of procedures and tests that you had to go thru, the Doctors found out that you have what is called Congenital Tracheomalacia. (here is a link to more info on tracheomalacia http://www.nlm.nih.gov/medlineplus/ency/article/001084.htm) But you had thrown up so much that you had burning in your esophogus and up to the trachea so they had to do something drastic to stop the vomiting. You had a surgery done, called Nissen fundoplication, where they tied off the top part of your stomach so you couldn't throw up anymore.
(link to more info on fundoplication http://en.wikipedia.org/wiki/Nissen_fundoplication
They also put in a feeding tube thru your belly button, it's called a Mickey Button.. Just like the MOUSE!! (I can't wait to take you to meet the mouse!) The mickey button lets your mom open up a tube and hook it up to machine that gives you additional feedings at night time. This is something that we are thinking you will have for about a year. It will come out after we get some fat on you. You are 14 months and you weigh 17 lbs. But that is great, because you were only 13 pounds a few months ago! So with the Fundo, The good news is that you stopped throwing up, but the bad news is that you have been choking alot everyday, and it's gotten so bad, that you are once again scared to eat, because you associate the choking with food. It is really just mucus on the back of the throat or in the tube, but it causes you to become frightened and wretch. Its a hard thing to watch you go thru because you get so scared. But your mom and dad just get down to business and help you out when it's happening. Even Nana and Papa are learning what we can do to help and are taking some classes so we will know what to do. You are a remakable boy Wes...in a 2 month period you learned to crawl, pull yourself up on furniture. You say baba, papa (your favorite word), and today I heard you DADA. You know your name and turn and smile when spoken too and know how to patti cake and just about have it down for giving 5! Graycee and Ryker make you laugh... ALOT! We went to the Dr today, they are going to try some new medicine for the wretching and hopefully that will help. We will take it one day at a time...Stay strong Cowboy. I love you!!!
